mahler's Blog
Kidney Operation UpdateMy operation to remove my left kidney was brought forward to the 18th. That went well. I came home yesterday afternoon, feel rather weak but glad to be home. The hospital and nurses were very nice, can't say the same for the food though. I was in surgery for 5 hours, I have extremely little pain, just a bit of soreness. I have a lot of staples which have to be removed at the surgery next Friday. For four days and nights I was totally demented and hallucinating. In fact totally off my head. I have been told that I was wandering up and down the wards, waking all the patients, trying to remove all my clothes and tubes, was held down by patients and nurses. I was rude to everyone and talking absolute rubbish. I did not know any of this, I felt in a happy place, the ward was festooned with garlands of flowers, beautiful pictures were on the walls and doors and kept changing, Beautiful bunches of red ribbons were floating through the air which i tried to catch, people and things were reduced in size, people were like dwarves and came and peered over the end of my bed. It was not until two days after the operation that I knew it had been done! I had to be shown the scars! When I had my breast cancer op I was given Tramadol, this sent me on a sort of trip, like an LSD one I have been told, but nothing like the above. So when I went in hospital for this op I told the nurses, anaesthetist and doctors not to give me any tramadol. It now appears that I had been given this drug as well as morphine, and goodness knows what else,I was loaded with it, goodness knows why because I was not in pain. After a couple of days Jackie (daughter)and Charlotte (granddaughter) insisted all drugs were taken off me and it took me a couple of days to get back to normal. They all thought I was senile dementia. I am furious, but they are denying giving me the drug. Jackie phoned a friend of mine who had worked with eminent Harley Street doctors and oncologists and was told that these two drugs had worked against each other, and one of the surgeons is going to write to my surgeon on my behalf. Jackie spent hours, day and night, insisting the nurses bleep doctors and getting them to the ward to answer questions, she commandeered the computers at the nurses station and looked at all the results of every test I had, they were all normal. A psychiatrist was sent to ask me the usual questions, he asked what year it is, from then on I answered all the questions that I knew he would ask before he even asked them! He was right confused by me! Anyway I was given a 100% mental state value! The results of what was found in my kidney will not be known for three weeks, but when i go back for the results I will be raising merry hell. After I had regained my senses I was treated with kid gloves and they were definitely trying to cover up for things. So I am back to normal, fully compos menus. I just feel very lacking in energy. If anyone else has had such an experience then I would love to hear about it.UPDATELast week I had an appointment with the heart specialist. He ordered an immediate echocardiogram. Yesterday I received a letter from him, I was scared to open it as I r thought he had found something nasty and was calling me back in. He has never written to me before after a test. My problem was that I had a blocked artery and the blood was not circulasting properly, and the left chamber had shrunk. He was perplexed because he said the artery was now unblocked, the blood was circulating well and the left chamber had grown back to normal size! There were no abnormalities! It seems a miracle has happened, I out it down to all the healing I have been receiving from all over the world, and the strict diet I have been on and the IP6 and curcumen I have been taking (info for that on the internet). I feel elated at this news, I have to see the kidney surgeon today and am hoping for good news there too. Fingers crossed. It seems my angels have been working overtime!
UPDATE ON MY PREVIOUS BLOGIt was a great day yesterday, I completed the last day of my 20 days of radiotherapy, said goodbye at last to the torture chamber! I was warned about loads of possible side effects but for some reason, except for a slight reddening of the skin, I had none of them. So today I have a lovely day off at home. Tomorrow I have to go for the horrid nuclear imaging scan on my kidneys as they think there is something nasty lurking in there, if that is so then the kidney will have to be removed. However I have been on a diet for the past month, red meat was banned and I took IP6 and curcumen. IF it has made no difference then all I can say is that I have done all that I could. Wish me luck! Ruth REASON FOR MY LATEST ABSENCE FROM EP
I came home from hospital yesterday after nearly three weeks.
I was due for radiotherapy on 25th Feb for 4 weeks, after the breast cancer operation told about in my previous blog, however - other things happened. I was waiting in hospital for an appointment when all of a sudden a black veil formed over my left eye and I could not see for a few moments. This happened a few more times during the week and my granddaughter and daughter took me to Moorfields A and E on Sunday 25th Jan. They thought I had a blocked blood vessel or that I had had a minor stroke (TIA), however I was not affected in any way from it. I was referred to Ealing hospital and saw a neurologist, who ordered an immediate neck scan and it was found that the main artery on the left side of my neck was 90% blocked and I was in danger of an imminent major stroke.
I went into hospital and the op was scheduled for four days time. However - they did a scan of my stomach and kidneys and found that in my left kidney there is a large mass, which looks malignant, also there is a small aortic aneurism in my stomach. The neck op was cancelled three times but took place two days ago on Tuesday, took five hours.
I was sent home the day after - yesterday, got a massive plaster all down one side of my neck, can't wash my hair and it is full of goodness knows what. For the actual op I had to be awake for a lot of the time, because if they worked on the wrong part of the artery then I would have had a stroke. Anyway the surgeon was very pleased with the results and said that if he had left it any longer then I would not be here today.
So radiotherapy now starts on the 9th for 4 weeks, the kidney op, which means it will have to be removed entirely, will be in about 6 weeks. Am I a happy bunny? No way! I am waiting for the next thing to happen - perhaps my leg will fall off! I could not contact people as the ward I was in I could not get a signal on my phone, and I was in a ward that was full of old people with dementia, and they treated me a lot of the time as though I was the same, which thoroughly annoyed me!!
I am now trying to wade through the 200 odd emails etc that are here on my computer, so thought a blog would reach some of the lovely people that have been wondering where I have been. BACK IN THE LAND OF THE LIVINGI have been absent from EP for a lot of December, this is what happened to me. On 1st December I had an operation to remove a cancerous breast lump, biopsies on the lymph nodes showed that the cancer had not spread and that it was all removed. I was discharged from hospital a few days later. Then on 11th December I had chest pains that would not go away, got really frightened so dialled 999 for an ambulance, which took me to hospital. I was admitted and had every test under the sun. The last one was last Friday at a very famous private hospital in London, for a nuclear scan. The results showed I have a blocked artery and there was a scar on the bottom of my heart. My consultant said that the scar indicated that I had had in the past a heart attack, probably in my sleep so I did not know about it! It was decided that the breathlessness and any chest pains could be treated with medication. So they let me out of hospital yesterday evening. Whilst in there I even managed to contract that awful diarrhoea and sickness bug on the ward, and was put into isolation! Anyway, although feeling a bit fragile I am now home and am going to my family tomorrow for Christmas. All of this has happened in under a month and has left me in quite a whirl! I had one big disappointment because on the 22nd I was due to go to Austria for the Christmas week, so had to cancel that holiday. Never mind, there is always next year. So that is the saga of why I have been missing from EP for quite a while and have not been answering messages. I wish you all a Happy Christmas and a great New Year. Ruth xxxx SUNDAY 27TH JULYPhew! It has been so hot and humid for the past few days, everyone is wishing for a storm to clear the air. My sitting rom does not get the sun all day yet it is already 74 degrees in there. No wind so eve sitting in the garden does noit help0 to cool one down. Very few homes in England do not have air conditioning, so I will now go and put the fan on and sit for a while to cool down. SCARYWe have all woken up this morning with a scary feeling. The park right opposite our houses has been cordoned off both ends with police tape, and there are police stationed everywhere. There has evidently been a serious incident and we are just hoping that it is not yet another stabbing, so close to home. SCARYWe have all woken up this morning with a scary feeling. The park right opposite our houses has been cordoned off both ends with police tape, and there are police stationed everywhere. There has evidently been a serious incident and we are just hoping that it is not yet another stabbing, so close to home. ANIMALS AND BOATS AT HENLEY SATURDAY 19THOn Saturday we went to Henley on Thames to take part in the Traditional Boats Rally. It waas to celebrate the ships that went to Dunkirk to rescue the soldiers off the beaches. We had an area allocated to us by the river for my granddaughter's and her fiance's animals and birds, most of them rescued animals. Up at 6am, loading the two Shetland ponies, ducks, goats, sheep, tortoises, geese, chickens, rabbits, guiea pigs, an enormous turkey and a Frizzled chick and other chiickens into the trailer.
There was a massive sail past by over 500 boats, and the a parade of the Dunkirk boats. How osme of them even made their way across the Channel I do not know! I spoke to a few of the WW2 veterans and the stories they had to tell were amazing. There was a flypast arranged to celebrate the RAF's anniversay, a Vulcan bomber, spitfires, Hurricanes and Lancaster bomber, which was going to drop poppy petals over the river. Unfortunately the waather in Southampton was bad so they could not take off, it was a great disappointment to all. All in all though, it was an amazing, and quite touching day. Here are a few of the boats, which have all e loovingly restored and cared for:
Pail Daniels (the magician) and Debbie Magee came and chatted to us, he offered to do a disappearing act on our rabbits! After setting up the pens the children and their parents started coming in, they were able to stroke, feed and hold the smaller animals and birds, and feed and groom the larger animals. They all had a terrific time and the animals enjoyed all the attention. The most peculiar bird was the Polish Frizzled chicken and the turkey stomped around all day with all of his feathers puffed up, he was annoyed because his mate had not come with us. FLYING HIGH Watch out - here she comes again! HENLEY ON THAMES, SATURDAY 19TH JULYThis is where I will be on Saturday 19th, with my granddaughter, fiance and their mobile farm, with Shetland ponies, donkeys, sheep, goats etc.. If anyone is near Henley on that day then do come and say hello. Throughout the weekend there will be continuous parades of all the many different classes of boats, including the " Association of Dunkirk Little Ships " (See photo left of "Tom Tit", an ADLS member) and the many beautiful craft of the Thames Vintage Boat Club . When not out on the water, all the craft will be moored to the bank, and provide a spectacular sight as you stroll along the river bank. At the discretion of the owners, you may be invited aboard to look over the craft, or even taken for a cruise . On Saturday the Rally opens at 9 am, with the sail-pasts and the Boat Jumble starting around 10 am, followed by a busy programme continuing until midnight, for those who wish to stay for the Illuminated Parade and for the dance in the Beer Tent (to a live band). Also we are proud to host the Solent Veteran Cycle Club each year, with a fine collection of Vintage Bicycles, with everything from tricycles (see photo left) to penny-farthings. At intervals, the club members will ride them in convoy (and traditional costume) up and down the bankside.
Nervous - and excited tooI have just got a letter, it contains confirmation of what I will be doing on my 74th birthday next Wednesday. In the letter is a voucher for my second flying lesson (my first one was on my 70th). My family lovingly decided I should repeat the experience, especially as whenever they asked what present I wanted I coauld not think of anything. So for a week now I will be a mixture of emotions nervous, excited, sleepless, anxious, scared, and happy! Will I remember what to do? Will I have the same handsome pilot (I hope so)! Must remember to change the batteries in my camera. Whoopee! Yippee! Dive for cover everyone!
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The Rally weekend is one that should not be missed by anyone who has an interest in the traditions of bygone years, or who is a lover of boats and boating of any sort. There a very full programme of events both on the water and on the riverbank. 